One thing I really miss is having energy. I get fatigued quickly. Taking a shower, doing my hair, and makeup
all at once is too much and I start to feel very weak. Making supper is ok as long as I can take
breaks to sit down. I hate that I can’t
run all kinds of errands at one time.
Two or three is usually about all I can do and depending on what they
are and how much work they take, that sometimes can be too much. I can’t lift anything more than a gallon of
milk until next Tuesday, but I sure look forward to doing that, also. All in due time.
I just started on solid foods last Tuesday and it seems as
if that’s helped my weight loss to settle and not drop so much at once. I’ve lost 25lbs so far and know there will be
more to come, but not dropping it all so quickly will hopefully help my other
organs to not go crazy. I played it
pretty safe for the most part, but I got a little gutsy with a few things AND I
must say everything went very well (no dumping syndrome or spit-ups)! I had a 2inx2in piece of pizza!!!! I had a pickle (I was worried about the
seeds, skin on the pickle, and acid)!!!!
I had ONE oreo!!!! I had two
Little Caesars breadsticks!!! I feel
like these are HUGE accomplishments!
Also, I don’t know why, but I’m surprised by how much I have to chew
chicken in order for it to be broken down enough to go down…it’s a lot of work!
Over the last week, I have learned quite a bit about my new
life. I feel like I should bullet point
the things I’ve learned…..here they are….
·
I don’t get hungry anymore without a stomach,
but I can tell when it’s time to eat or it’s been too long when I start feeling
nauseous.
·
I don’t get full anymore, either. I can tell I’m getting full when I gurgle
quite a bit, but have tried to be aware of how much I’m putting into my body so
I don’t overdo it.
·
I have had food get stuck a couple times due to
me not chewing as much as I should. When
food gets stuck, I get the hiccups like crazy.
Walking around and taking deep breaths help. I,
also, tap on my chest near my esophagus where I can feel the food is stuck and
it hurts like heck, but I haven’t had any food come back up, thank goodness! Taking a drink of water doesn’t help, either…just
causes more pain. The pain I’m talking
of isn’t terrible, but it’s definitely uncomfortable! I would say it usually lasts about 5 minutes
on average.
·
I can’t go to bed and lay on my side immediately
as I have pain. Laying on my back for a
few minutes and then rolling to my side works best. Also, TMI…if I lay on my left side I usually
have to get up and use the bathroom shortly thereafter. I don’t know if that has something to do with
all my organs shifting and laying on my new system and it pushes it out or what?
This
is all a learning game and although I did a TON of research before surgery,
each person is different and it’s all trial and error. I learn something new each day and expect that
to continue for a while, yet. I’m still
just floored as to how great I feel and am so thankful for that!
Hi Heather.
ReplyDeleteI'm new to this posting thing so bear with me as I deleted the first one I sent you! I am scheduled for a TG next month due to CDH1+. I am scared of the surgery and all the unknowns but wanted to let you know that you give me hope and reassurance that all can be ok. Thank you for taking the time to share your experience.
Hi there!!! I was scared going into it, too. Each person is so different in their recovery and I knew that I would have to "get back to normal" a little quicker having a 4 year old running around. haha. I'm shocked and amazed as to how well I am doing and never expected at this point to be feeling so good...especially after reading so many blogs of others. Stay positive and although you need to heal after, make sure you are getting up and walking around. Also, I feel like keeping up on my vitamins and supplements has helped (almost acts as an additional meal 2x/day). Good luck to you!!!!!
DeleteGreat to hear that you are doing well Heather. Do not push it though. Take your time, right now it is all about you and your healing process. Work will be there when you are ready to return.
ReplyDeleteYes...I need to keep reminding myself of that....not to rush or push it. I've tried doing that a little more this week as I go back to work Monday. I have a desk job and my boss is great about needing to eat ALL DAY LONG lol, so I'm hoping it goes well, but if a whole day is too much....it's just too much. We will see!!!
DeleteKeep going Heather and don't rush things because before you know it one whole year will have gone by and you will be thinking..wow that has gone fast. Keep well and happy and your blog helps and will help other people which is a big thing.
ReplyDeleteAlready, I feel like WOAH...4 weeks have gone by?! How did that happen. haha. I've been paying attention to my body a little more this last week and I think that's helped! It's hard not to rush things with a 4 year old running around, but I'm doing my best and she's a great little helper! :)
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ReplyDeletesorry Heather having trouble with the website and as my first comment did not publish put up another and then discovered both were there.
ReplyDeleteHeather - I would love to correspond with you in a more detailed manner as I am looking for some guidance with my upcoming procedure. Was hoping that you would be willing to give me your email address so I could connect with you that way. Thanks so much.
ReplyDeleteAbsolutely!!! heather.huus@hotmail.com. Feel free ANY time and feel free to ask whatever comes to mind! :)
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