Tuesday, December 12, 2017

HEALTH CENTRAL

I was able to share my story with Elizabeth Millard with Health Central.  I think the story turned out nicely!! :)  Feel free to check it out here.....

https://www.healthcentral.com/article/heredity-diffuse-gastric-cancer-genetic-link?ic=edit

Monday, December 4, 2017

MAMMO

Along with this crazy mutation comes the increased risk of lobular breast cancer. There are a LOT of breast cancer patients on my mom's side of the family...lobular included.

Because of the increased risk, every 6 months I rotate between doing a mammogram and MRI.

 FRIDAY was mammogram day. It went well and I had no concerns. If anything shows up, I will get a call...if not, a letter. Although mammograms aren't the most fun thing to do in the world, I'm thankful for these means of being preventative until or if I decide a double mastectomy is something I want to do. Here's to hoping I get a letter and not a call!!!

Tuesday, November 28, 2017

DIET PEPSI

MOST foods and drinks I don't have an issue with as long as I take my time and/or chew properly.

Diet Pepsi is NOT included in this!!! Every now and then, I crave a Diet Pepsi (regular sodas have WAY too much sugar for this stomachless gal) and will give it a shot as things that didn't work yesterday, sometimes will work today and visa versa. NOPE, not Diet Pepsi. I SWEAR this is the MOST carbonated and fizzy beverage IN THE WORLD (other diet sodas do NOT bother me)...an...d not just any Diet Pepsi, it has to be BOTTLED Diet Pepsi. The PAIN that comes from the amount of carbonation is AWFUL. So, why do I continue to try it from time to time?? I have NO idea...maybe it comes from the fact that I CAN'T have it, so I want it that much more. I'm hoping my system will maybe just work itself out and let me have it so I can get off this bottled Diet Pepsi kick!

 

Monday, November 27, 2017

SEAHORSE CHRISTMAS ORNAMENT

 
Did you know that seahorses don't have stomachs, either??

LOVE this addition to my Christmas tree! Most beautiful seahorse I've ever seen!

HAPPY THANKSGIVING!!!

I overdid it, but man oh man was it worth it!!!

Happy Thanksgiving!!! My heart has never felt as full as it does this year. I have so much to be thankful for and that feels so good!!!!


Wednesday, November 22, 2017

FINDING YOUR WHY

When it, sometimes, feels like the whole world is against you with this mutation, you MUST find your WHY.  We talked about this a LOT in LA at the Spotlight on Gastric Cancer- A Night of Healing.

This little girl right here, Miss Paige, is MY WHY.  Without her, I'm not sure I would have done this surgery, let alone tested for the CDH1 mutation.  I can't say, for sure, that I wouldn't have done either, but I know that SHE is my reason behind wanting to be here for the long term, if possible.  I hope and pray that I will be able to watch her grow into a beautiful young lady, graduate high school and college, get married, and have babies.  These are all things my mom was unable to be here for due to Hereditary Diffuse Gastric Cancer (HDGC) taking her life.  So, if you choose NOT to test or do this surgery for yourself and you know there is the chance of testing positive, find your WHY and make that your primary focus.  I have not regretted my decision since day one and am SO thankful that I was given this option to be preventative.  I hope I can stick around for a very long time for this little cutie in the picture!  What or who is YOUR why?

 

TWO SPOTS OF CANCER FOUND

TWO SPOTS OF CANCER FOUND!!!
My cousin, Stacie , had her total gastrectomy (stomach removed) 3 weeks ago TODAY. She just got home over the weekend due to some complications. She had an endoscopy in October and it came back CLEAR. ONE....I REPEAT ONE MONTH LATER...she has her TG and pathology shows TWO spots of CANCER!!!! No chemo or radiation needed, but she will still need to meet with an oncologist. Just think if she would have waited another 6 months to do another endoscopy and/or surgery where she might be. This cancer is so quick to spread and the only way to detect it is with an endoscopy as it doesn't show up on any kind of x-ray or scan! I am so happy and thankful, even with the complications she has had, that she chose to do this surgery and I'm sure she agrees!