Tuesday, October 17, 2017

RESEARCH IS POWER

After being a part of the Inherited Breast and Ovarian Cancer research for the last year with Mayo Clinic, it looks like this is my last stack of papers they need from me. I sure hope the labs and information I provided over the last year bring some hope and answers!!!

RESEARCH IS POWER!!!!

SEAHORSE ORNAMENT

I don't have my Christmas tree up, yet, but I couldn't pass on this ornament!!!
 
 
(seahorses don't have stomachs, either)

PILL BOX

My little lady LOVES helping me fill my pill box....I fill it monthly (ran out of some tablets, so that's why we are re-filling it now) and each little section I fill for the day and not by morning, noon, evening, and night. So, it gets me through a whole months worth and is a life saver when it comes to keeping up on my vitamins!!

 Also, not one of those is a med, but rather vitamins. AND...no, I'm not taking the antacid/tums for heartburn (no heartburn without a stomach- yay!!) or an achy tummy, but rather for the high amount of calcium in them!!

Thursday, October 12, 2017

LEAVE THEM ALONE, CDH1!

I am getting really excited for my presentation at City of Hope in LA.  I've been practicing like crazy and tweaking my speech where need. 
 
It never fails that when I get to this slide in my presentation, I get upset.  I don't care if this CDH1 mutation wants to mess with me....I GOT THIS, but when it messes with my family and so many of them, I start to get angry about it.  I'm thankful my wonderful family has options, like myself, but it's still frustrating none the less---LEAVE THEM ALONE, CDH1!
 

Thursday, September 28, 2017

Spotlight on Gastric Cancer- LA

I AM TICKLED PERIWINKLE (see what I did there? ) TO ANNOUNCE THAT.....

I will be sharing my story in LA (Duarte, CA) at this WONDERFUL event- Spotlight on Stomach Cancer hosted by No Stomach for Cancer at City of Hope. I could not be more excited!!! On top of that, I get to meet some wonderful stomachless friends....IN PERSON....Steve Dang (here is Steve's blog https://dangsteve.com/) and the Stomachless Sisters, Nicole McDonald and Jessica Sasser (here is Nicole & Jessica's blog http://thestomachlesssisters.blogspot.com/). Yay!!! Cannot wait!!

Wednesday, September 6, 2017

STOMACH CANCER AWARENESS MONTH

Last year, I reached out to North Dakota Department of Health to see if the governor could/would declare November as Stomach Cancer Awareness month.  I was informed that we were too close to the deadline, but that it would be brought up this year, again, with the new governor.  I just received a disappointing email back...

"I wanted to reach out to you and let you know that I did not forget your request/suggestion for a stomach cancer awareness month proclamation. Unfortunately our new governor has set strict rules for proclamations for each section of the each state agency and the leadership team from the Department of Health determined that based on priorities and indicator measurements that we are responsible for, they submitted a proclamation for Suicide Awareness. I just wanted to be sure to follow up with you as I know this is something that was on your heart last year. Please let me know if you have any questions.
Janna Pastir
Program Director, Comprehensive Cancer Control
Division of Cancer Prevention and Control (DCPC)
North Dakota Department of Health "
 
It makes me VERY happy that they are lifting up the awareness of suicide as that is a VERY VERY important topic!!!  I'm just disappointed that it seems, as always, stomach cancer awareness, knowledge, and funding gets put on the back burner.  This is very near and dear to my heart, obviously.  I replied back to see if there is anything we can do, going forward.  I guess we will see.